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Information on living with Fontan surgery

FONTAN AND YOU

Fontan and You offers tips for moving into adolescence and adulthood after a cardiac Fontan procedure. 
It suggests handy information for the life you want to lead.

If you're growing into adolescence or young adulthood after Fontan heart surgery, it might be time to take charge of your own heart knowledge. 

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There's lots of stuff for little kids with congenital heart conditions. There are loads of resources talking to parents. If you see a Fontan story on the news, it usually features a baby or toddler with the parents doing the talking. 

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That's all good, but as you get older you need information that relates to you. Some days you might feel like life sucks. You probably want to forget you've had a Fontan.

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Other days you might be thinking it's incredible that someone re-plumbed your heart when it was so tiny. You cheer the life that Fontan surgery gave you.

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Let's hope this site talks about some of the stuff you want to know. And makes you feel that you're not alone when you feel anxious about the future. All over the world, there are people your age with Fontans who feel and worry and laugh and cry - just like you.

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As you grow through adolescence and into adulthood, try to remember that your heart condition is part of who you are, but it's not your identity. Yours is a life that should be jam-packed with everything you're interested in. And all the things that you love to do.

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Either way, Fontan and You offers snippets of information to help you navigate your teenage and young adult life living with a Fontan. Oh, and if you've had a form of heart surgery or treatment that's not a Fontan, you may find some of these pages help what you're experiencing too. 

Confidence

Enjoy exploring this site and if you think of a new area you would like covered, or have comments about this site, feel free to get in touch. 

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About this site: I created Fontan and You in memory of our son William, who received the Fontan procedure and died from mental illness. If this site helps you navigate your life in even a tiny way, then I'll be happy. Please contact doctors or psychologists for your individual care and needs. If you have a Fontan, then you're extraordinary. I wish you every piece of positivity I have.

Cheers, Ros Marsden

Disclaimer – I don’t have medical/psychology qualifications. The information on Fontan and You is general and based on a mother's observations. However, I'm lucky to have Fontan specialists who have checked the content provided. It doesn’t address the personal facts of your Fontan or heart condition. Talk to cardiac experts, family and friends if you are acting on any information on this site to check that it applies to you.

Contact me here with any suggestions or feedback about this site. 

© 2020 Ros Marsden 

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